Thursday, May 8, 2014

Suddenly Facing Death: The Tim Monette Story



Sucking down electric green Mountain Dew and enjoying every bit of a tangy buffalo chicken sandwich, Tim Monette is way more wired than the teenager will get from his mom’s mac and cheese that he has a true passion for.
            The senior at Northville Central School stands a gentle six feet tall, has one of the most contagious smiles a giant can have, and loves his sports. He’s your average teenage middle-class American boy, except for one physical trait no one can ignore. He’s bald at eighteen.
 At Recovery Sports Grill in Amsterdam, Tim can enjoy any game he wants to see. Anything from the Yankees battling the Red Sox, to his beloved hero Blake Griffin and the Los Angeles Clippers battling for the Western Conference title in NBA action, and he’s in front row seats to it all. With HDTVs, sports, Mountain Dew, and delicious food, Tim is in his sanctuary, his heaven. But, not the heaven he’s been avoiding for the past six months.
While Griffin and the Clippers battle in the toughest conference in the NBA, Tim has been having one hell of a battle himself.
Last fall in the midst of his senior-year soccer season, Tim battled stomach pains. Sharp stomach pains. As a goalkeeper, Tim had no choice but to ignore the searing pain in his abdomen to keep his opponents from scoring.
“I thought it was the flu,” said Shawna Monette, Tim’s mother. “During that time of year the virus was going around.”
The initial diagnosis by Tim’s doctors was similar. He was given pills to combat a stomach bug. Tim continued to play.
Two weeks later, Tim is on his back listening to the buzzing, and annoying click-clack of a CAT scan searching for a kidney stone. However, the CAT scan had a greater find, a large mass on Tim’s abdomen. Not something he could pass through with one trip to the bathroom. Tim continued to play.
Tim’s scan was sent to Albany Medical Center to be examined and answer the daunting question of whether or not the CAT scan found a cancerous tumor in his abdomen. One biopsy later, and Tim’s family is in a hospital waiting for the news.
It’s cancer. Burkitt’s lymphoma, a rare, highly aggressive cancer.
“I was scared,” said Tim.
Shawna said, “My whole world just ended.” Her seventeen year old boy may never graduate, never get married, and just suffered one of the biggest losses of his athletic career.
            Just two weeks earlier, Tim had eighty minutes for the rest of his life. The top goal for his senior soccer season was to come back home to Northville with a Sectional title. Eighty minutes for glory.
            “Fort Ann is a tough team,” Tim said. “It was one of the biggest games I’ve ever played in, and afterwards I was really upset. I was disappointed that I didn’t play better.”
            Tim’s world ended.
            Being a runner-up in Sectional finals for the second year in a row was the worst part of Monette’s high school career. Now comes cancer.
            The scoreboard clock on Tim Monette’s life is ticking.
            Doctors told Tim that because the cancer is aggressive, the cancer itself would respond quickly to chemotherapy treatments. Treatments consisted of Tim being hooked up to machines while a bag dripped fluid from a bag through a port, and to his abdomen.
            Tim did a little research on the cancer he was diagnosed with, and one thing stood out, the survival rate. “I saw there was over a ninety percent survival rate for patients with my cancer,” said Tim. It was just one stat, but more encouragement for the battle.
            Treatments and hospital visits weren’t easy for Tim or his family though.
            “I got miserable of being in the hospital, sometimes for a week at a time,” said Tim. “I hated not being able to hang around with my friends.”
            Tim’s best friend, Kalob Russell, shares Tim’s passion for sports. While Tim held down the fort all season in the goal, Kalob was the ball handler, a midfielder.
            “When I discovered he was diagnosed I was in school, and it was a text from Tim,” said Russell. Tim’s diagnosis meant that Kalob, the basketball team’s point guard, could be without his most reliable big man for his last season of varsity basketball. “He’s a phenomenal player at both ends of the floor,” said Kalob.
            Back in the hospital, Tim continued to battle with his mom by his side the entire time.
            “I just wanted to be there for him, it was a rough time, and he had to spend his eighteenth birthday in the hospital,” said Shawna. “As a mom, I just wanted to be there for him, his father and grandmother both offered to stay, but I just wanted to be there.”
            In fact, Shawna spent so much time in the hospital with Tim that she used all of her days off from her work for the Fulton County Lexington chapter helping children and adult with disabilities.
            “She stayed with me every night,” said Tim. “If I didn’t like the hospital food, she’d go get me Subway or something better.” Shawna recalls there was a lot of pizza during those hospital visits.
**
            Prior to basketball season, Tim was awarded the Western Athletic Conference MVP for the North division. Along with Northville, the North included rivals Mayfield and Galway, arguably the fiercest three-way rivalry in Section II.
            “Leaving the field with a victory over Northville or Mayfield always put a smile on my face. And to be honest, the smile does get bigger the more the fans get into the game,” said Galway coach Rob Martin.
            “Those are the biggest games of the year, no doubt,” said Mayfield coach Jon Caraco. “When the schedule comes out, they are the ones that all the players and coaches circle. A result against Galway and Northville is a reflection of the kids working hard and coming together.”
            Even with the stomach pains, he didn’t even know were cancer, the MVP award proved Tim worked the hardest.
            “I couldn’t have been more proud in that moment,” said Shawna Monette.
            Jon Caraco and Rob Martin each had a part in the voting for MVP.
            “To be named WAC MVP is a testament to hard work, dedication, and sportsmanship,” said Caraco.
            Martin agreed, “I think it’s a great testament to his playing ability and respect garnered by other coaches.”
            The recognition as WAC MVP for soccer was one of the biggest ups for Tim on the field. Basketball season was going to give Tim a lot of the downs.
            The doctors told Tim that he would lose his hair. Three months after treatments had started Tim still had his nicely cropped, Blake Griffin-like brown hair to adorn the top of his head. Maybe he’d be a lucky one who wouldn’t lose his hair. He thought it’d happen sooner.
            Walking around Price Chopper with his family, Tim noticed a substantial amount of hair had fallen onto the groceries that were in the family’s shopping cart. Tim wondered, “Where did all this dog hair come from?” With one run of his fingers through his hair, a wad of hair between his fingers was all the evidence that Tim needed to see. The moment he would hate most about cancer had now surfaced.
            “It was one of the tougher moments for me,” said Shawna. “There’s nothing I could say or do to fix it.”
            She couldn’t fix it, but Tim did. He went home and shaved all his hair. If it was going to happen, Tim made it happen faster. He had been so insecure about losing his hair, and now it was gone. The insecurity had reached its height. Until every varsity soccer and basketball player shaved their heads in unison with Tim. Afraid to be unlike everyone else with hair, suddenly everyone wanted to join the kid without hair.
            The entire team had come together in looking like high school Jason Kidds, but soon Tim would be taken away from basketball.
            Before one of the team’s home basketball games, Tim was pulled into Coach John Karbowski’s office and was told that because he hasn’t been attending school, he couldn’t play. Tim had been using a tutor to continue the work and studies of his senior year, but even that wasn’t acceptable for the school. He would go into the school and grab his homework and complete it at home. For gym class he would finish packets in order to get credit for the class.
            “Tim is one of the hardest working athletes I have ever had the opportunity to coach,” said Karbowski, who is also the school’s athletic director. “He does a lot of things that often go unnoticed to the normal fan, but as a coach, that I’d like to see all my players do every time they take the court.”
            Tim admits that soccer is his sport. In basketball, he’s a rebounder, not a scorer. He compares himself to Blake Griffin, his Twitter handle is even @NextBGriffin_23, and loves doing the dirty work.
 He was even named to the all-tournament team during a Christmas tournament at Northville which he believes was because of his battle with cancer, and not supported by the stats he posted.
            “He plays so hard,” said Karbowski. “He would dive on the floor for every loose ball even if he was initially nowhere near the ball when it hit the floor.”
Call it a highlight of the situation, but Tim played that night. He wouldn’t after.
            “I wasn’t able to participate in practice or in games because of the school,” said Tim.
            While Tim sat on the sidelines, the nation joined him and his teammates. The hashtag, #LetTimPlay started trending on Twitter. Hundreds of people across the nation heard about Tim’s story and join the fight in getting him back onto the court again.
“It was cool to see people as far away as California, and all over the nation tweeting it,” said Tim.  
Through the thousands of tweets and critical response from the media and the community, Tim was reinstated to play for the basketball team. However, Tim believes it was more of a cover up job.
“They made it seem like that wasn’t what they said,” said Tim. “Made it look like they weren’t so bad.”
The support would soon become immense for Tim.
In Fort Ann, Chris Jackson worked to manufacture drink koozies with the phrase “Fort Ann/Northville United” . All the profits from the koozies were given to the Monette family. “I was grateful that someone went out of their way to help me and my family,” said Tim. “Someone I didn’t even know personally.”
Back home, Mckayla Fancher began to design t-shirts in support of Tim’s fight. Starting with the color representing Tim’s cancer, wouldn’t you know it, electric green. The shirts along with electric green Livestrong wristbands had the hashtags #WontBeBeat and #TeamMonette. Much like Jackson’s efforts, all the money went towards Tim’s bills and travel expenses.
“Donations have covered at least fifty percent of the cost of gas and other things not including medical bills,” said Tim.
Even opposing schools used different tactics to support Tim. Galway wore the electric green shirts during warm-ups, and wore green socks, in stark contrast to their royal blue and gold school colors. Canajoharie wore blue tape on their black jerseys, and a lot of people at the Mayfield game shook his hand.
“The support is very overwhelming, and I can’t thank the people enough”, said Shawna.
Tim is just as thankful. “It feels really good that the rivals and athletes you want to beat were giving donations and putting this stuff together just to help my family and I out.”
The true highlight of his basketball season was receiving the New York State 2014 Spirit of Sport Award from the New York Public High School Athletic Association for battling cancer and still competing at a high level on the field. Given a choice between the Spirit of Sport and the MVP award, Tim goes with the MVP.
“With the MVP award I proved myself,” he said. “It’s supported by my stats. The other awards aren’t really decided by my play or what I do.”
The media attention is a different story for Tim Monette. “I don’t like it. I don’t like talking on camera or in front of people,” said the camera-shy Tim. His shyness was put on display during an interview after a win in soccer over St. Johnsville when a reporter asked him what the defense had done to help win the game. Tim’s intriguing response? “Kicked the ball really far away from the goal,” he said laughing at himself. Something Tim isn’t shy to do. He keeps a picture on his phone of Galway’s Josh Bailey “nutmegging” him from thirty yards out with four minutes left to tie the game at one. A game, Galway would win in OT, 2-1. He still laughs about it.
“He’s optimistic,” said Kalob Russell. “That’s just the type of kid he is, always trying to be in a positive mood and brighten the mood of others around him.”
Throughout all the treatments, Shawna and Tim have said that the side effects haven’t been as bad as they thought.
Shawna said, “Treatments were hard, not as much as anticipated, but still hard to see him go through it. Thank God he didn’t have bad side effects, mostly the vomiting.”
Tim was more worried about the mouth sores that are common with Burkitt’s lymphoma. “I only got one, and it wasn’t that bad,” he said. Nausea only got to Tim once as well.
Tim’s biggest fear is still death. At eighteen, it’s hard to ignore the reality that Tim has been living with a disease that could kill him, and not allow him to see tomorrow. Every milestone a person can go through, Tim may never get the chance to enjoy.
“If I passed away, I’d want everyone to remember how hard I worked for everything,” said Tim. “I always gave one-hundred and ten percent. I’d want them to remember what I did.”
As Tim’s best friend, Kalob tried not to focus on it. “I always tried not to think like that. Although I always had the thought of, “My best friend has cancer, there’s a possibility something can happen to him.” It’s scary, but if he senses my fear, I wouldn’t want it to scare him.”
Tim’s last treatment isn’t until July, but Tim is convinced he’ll be a survivor. His last scan showed a mass, but the doctors couldn’t confirm if it was a cancerous mass, dead or scar tissue, or just his intestine.
On April 15th, Shawna Monette posted via Facebook that Tim’s doctor said his cancer was in remission. A six-month battle that had costed Tim time on the basketball court, time away from friends, and too much time in the hospital seemed to begin to come to end with Tim the victor.
“It’s amazing knowing it’s all gone, and I’m basically on a cruise control, and really don’t have to worry,” said Tim.
“It was so relieving to hear,” said Shawna. “It was one of the happiest days of my life besides him being born.”
Kalob was on vacation in Baltimore when he received the text from Tim. “Man was I excited! I actually started to cry happy tears,” said Kalob. “I knew he could do it. I told him from day one he was going to beat cancer.”
In June, Tim will be graduating alongside Kalob from Northville Central School. After that, Tim plans to attend Fulton Montgomery Community College and study criminal justice in the hopes of one day becoming a New York State Trooper.
Shawna is excited for Tim’s future, “He’ll be fulfilling at whatever he sets his mind to. He’s a strong, young man.”
Tim Monette’s entering another quarter of his life. The scoreboard clock has reset, and there’s no doubt the scoreboard says he’s in the lead. But, even Tim will be the first to admit it’s the hardest points he’s ever scored.
“I just want them to remember what I did.”